Kristi Ann's Haven! :: Physical Health :: Physically Challenged :: "My Story" Page 1 of 9 » Jump to page   Go     Author Topic: "My Story" (Read 5,634 times) MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Thread Started on Oct 21, 2005, 1:11pm » NOTE: Bold Are Links to Click on!!! I am Severely Disabled at times.. Exercise is something only a few can do! I walk with Two Forearm Crutches at home and a Walker outside and Now I am in a Wheelchair all the time I am awake! It is Very Difficult to get exercise as I have lots of aliments.. These are my aliments below; 1) Anxiety 2) Tinnitus 3) Arthritis 4) Color Blind 5) Heart Burn 6) Astigmatism 7) Birth Defect 8) Herniated Disks 9) Sleep Disorder 10) Major Depression 11) Bursitis in my Hips 12) Migraine Headaches Hi Everyone! My name is KristiAnn aka lilPrincess. I was born in Northern California in 1960 north from San Francisco. This is My Story below. Doctors discovered my birth defect "Pectus Excavatum" right after I was born. I don't remember the doctors or the hospitals I was taken too. I know my mother told me I was taken to Shriners Hospital and others before I could remember anything. My mother and father moved from Northern, California in 1964 to Southern, California. My daddy took a higher paying job and their were better prospective hospitals in Southern, California in 1964. I had to wear a special T brace from age 2 to five, I also had to do special exercises rocking back and forth while holding my ankles with my hands while on my chest. I wasn't allowed to ride a bicycle at all until 1968 or 1969. Wonderful doctors at Los Angeles Orthopaedic Hospital Foundation treated me so nice and gentle. Well, 1965 came around, many x-rays, more than I care to remember, brrrrrrr, it was cold in there. My one wonderful, loving doctor, Dr. Bruer operated on me in 1965 at the Los Angeles Orthopaedic Hospital . My center Sternum Bone was Fused to my Back Bone when I was born. I missed a lot of school in Kindergarten . I remember to this day 45 years ago today, nurses rolling me into a big room, I asked my doctor what the big light was for, he said "It will make you go to sleep sweetie". I don't remember the surgery to well, thank goodness! What I do remember is me laying in my hospital bed looking down at myself laying there with all this machines hooked up to me, and my mother and father crying. I now know what I was seeing. My mother told me much later in my life the hospital kept me unconscious for three or four days after my surgery. So, I must have left my body and watched them and myself. It's no wonder I believe in God (Daddy) from then on! I spent a long arduous road healing in 1965. I don't remember how long I was in the hospital; I do know it was a long time though. My pin came out of my chest in 1966 or 1967, I got an ambulance ride to the hospital, kewl, and I didn't feel any pain. I truly thought my mother poured ketchup on me . The pin had threads on it so it would work its way out all by itself. My mother still has my baby book with the pin and my wrist band in it to this day! Anyhow, I was put to sleep again so Dr. Bruer could remove my pin. This pin was inserted into my chest bones to help keep them steady from clasping back in again. I had to wear a special made brace from 1965 to 1968 around my chest area. After I seen my doctor again in 1968, he gave me the go ahead so I could have a bicycle now. I was elated, and so happy I could have a bicycle now!! I got to pick the any bicycle I wanted at the Schwinn dealer; it was a happy day for me!!! As I was growing up, I had pains in my chest bones. The doctors said it's because I was growing. I wrote this Poem Below about my Birth Defect! *~*My Heart Poem*~* Be careful with my heart, I gave it to you for safe keeping, It’s a very fragile and weak heart that gets hurt real easy, Why is this too be, My heart was a nice heart, Ask my doctors who moved my heart and lungs around, God only knows why my heart hurts all so bad, Trusting, Believing, and safe satisfaction that someone will take care of it, My heart believes in Love and Security, Caring of others to no end, Why is my heart so low and sad, It will heal in time, With ever-loving tender kindness, Please be kind to my Heart, It Loves you too no end. Copyright © March 11th, 2001 KristiAnn MsGuidedAngel lilnorgePrincess In 1995 I contracted Pneumonia and had x-rays done on my chest again. The doctor told me after I got better; he wanted to show me something I had no idea what it was either. After I got well, the doctor showed me my x-rays and explained I had wires in my center sternum bones. As I looked at them and showed him my birth defect he then knew why the wires were there for. I had no idea, not even my mother knew I had stainless steel wires holding my chest bones together still. I was shocked myself to know I had those wires within me still. My doctor explained to me they were probably put there to hold my chest together while I was healing. Plus he told me they are deeply embedded with in my sternum bones that it's impossible to remove them. I am happy now I'm alive to this day I thank God for helping me through my life. Updates 2004 & 2005: Sad news now. I have arthritis in my rib cage, and have to take special medications to help control my pain. I also have two ruptured disks in my back at C5-C6 in my neck that I have to wear a rigid Neck Brace all day. My other disk rupture is at L4-L5 in my lower back and its worse than my neck, as its pressing on two sides of my spinal cord with not enough room for the nerves to go through it. I have to walk with a set of Forearm Crutches now inside, and a Four Wheeled Walker Outside. I believe everything happens for a purpose in our lives. I have faith in God and believe He will help me through this. My Past was taken care of, so my future will be as well. . " Remember, everything will be okay" Updates 2005.. I Won my Social Security Disability Claim August 22nd, 2005 YaY! Praise God. I CANNOT wait until I can move, because I am tired of abuse towards me!!! God Bless, YSIC \o/ KristiAnn lilPrincess MsGuidedAngel Admin/Owner Kristi Ann's Haven « Last Edit: Jan 27, 2010, 7:13pm by MsGuidedAngel » Link to Post - Back to Top   Logged MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Reply #1 on Oct 22, 2005, 9:51am » October 22nd, 2005 I am Very Depressed, because Social Security Administration (SSA) supposed Deposit my Big Back Checks in my Account Check Today October 22nd, 2005!! I checked my Bank, and the account is Not have still any money from them at all... I NEED to move, I am Tired of the Abuse here ... I have No Energy to do anything at all, my motivation is gone. I am tired all the time, I don't eat right, I don't go any where ( because no car insurance on my Jeep ). « Last Edit: Oct 23, 2005, 8:47pm by MsGuidedAngel » Link to Post - Back to Top   Logged MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Reply #2 on Oct 24, 2005, 1:30pm » October 24th, 2005 I am Crying I called the Social Security Administration (SSA) 800 number today and spoke with Janet there today. As Someone told me back in September that if I don't get all my back pay by October 22nd, 2005 to call them. So, I called today and Janet says I will get about half of my Supplemental Security Income (SSI) probably after November 1st sometime and they will pay me the other half in six months, HUH I said!! I Told them the (SSA) I am Severely Disabled, and haven't Income since the year 2003.... I have Heard Nothing about my Back Pay for my SSDI as of yet.. I HAVEN'T Gotten Anything for my Back Pay as of yet, and They don't know when this is Going to happen either... I will get a little Supplemental Security Income (SSI) Check November 1st, 2005, but Nothing Yet for my Social Security Disability Insurance (SSDI). I am Extremely Depressed, because of everything.. I have been crying just about all day. I have NO Ambition, or Motivation to do anything at all. I ran out of my 200mg of Zoloft three days ago, and I am VERY moody at Everything. I have run out of my other medications also three days ago, and they're for my Severe Disabilities I have. I slept from 11pm last night to 11am this morning, its late afternoon and I don't have time to take a shower, I am WAY too TIRED and need to sleep some more, Depression is Something I have had since I was Very Little, because I was Born Disabled. I can barley walk with Forearm Crutches I have, The arthritis I have has since I was a baby is getting worse all over my body.. Please and PRAY for me I cannot think right either. Please Enjoy Kristi Ann's Haven.. I have to go too my bank tomorrow to see if I can get a Loan for a year in advance, this is so I can buy the home I want, and move out on my own. I WILL get almost 35K soon HOPEFULLY, I WANT TO MOVE!!!!!!!!!! Owner/Admin Kristi Ann's Haven KristiAnn lilPrincess MsGuidedAngel Link to Post - Back to Top   Logged MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Reply #3 on Oct 24, 2005, 10:48pm » October 25th, 2005 Bad NEWS, My 1995 Jeep Grand Cherokee Was Stolen this late Evening October 24th, 2005, my room-mate seen my Jeep when she caught the bus around 7PM, and when she came back at 11pm and it was GONE from the Disabled Parking Space!!! I Called the Police Right away and an Officer Came out and took a report from me and they're working on it right now!! PLEASE EVERYONE I NEED HELP I CANNOT STAND ANYMORE STRESS IN MY LIFE AT ALL!!! PLEASE PRAY THAT I GET MY JEEP GRAND CHEROKEE BACK ASAP!!! I NEED it because I need my Pain Medication from the Pharmacy tomorrow and some other Medications for my Severe Disabilities that I have.. PLEASE (ALWAYS SAY A PRAYER) for me Please! I am Crying « Last Edit: Oct 25, 2005, 1:35pm by MsGuidedAngel » Link to Post - Back to Top   Logged MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Reply #4 on Oct 25, 2005, 11:24am » October 25th, 2005 My Moods are ~> WHY, Because I HAVE BEEN WITHOUT MY 200mg of Zoloft four days NOW!! ALSO, I CANNOT GET MY VICODIN PAIN MEDICATION OR FOOD OR ANYTHING. I CANNOT GO ANYWHERE AT ALL........ HOW WOULD YOU FEEL IF YOU HAD YOUR ONLY CAR STOLEN!? MY JEEP GRAND CHEROKEE WAS PAID OFF AND IT WAS MY ONLY TRANSPORTATION TO GET TOO MY DOCTORS APPOINTMENTS, GET MY MEDICATIONS OR EVEN FOOD... I am HURTING BIG TIME, AND IT SEEMS NO ONE CARES!! I am TIRED OF HURTING FROM MY BORN WITH SEVERE DISABILITIES, I WANT DIE AND GO TOO HEAVEN, OTHERWISE I WANT TO GIVE UP AS THE USA GOVERNMENT DON'T CARE EITHER. NOR DOES OUR STUPID PRESIDENT BUSH CARE ABOUT ANY OF US EITHER!!! MY DREAMS SEEM TO WENT OUT THE WINDOW, GOODBYE............. « Last Edit: Oct 25, 2005, 11:24am by MsGuidedAngel » Link to Post - Back to Top   Logged Susan Administrator Admin/Helper member is offline [Mo0:0] Joined: Aug 2004 Gender: Female Posts: 1,235 Location: Florida Re: "My Story" « Reply #5 on Oct 25, 2005, 1:11pm » I hope that you get your car back soon Kristi. How are you coming on getting the house? Is there someone from your church who could help you get your meds? I will certainly keep you in my prayers over the next few days. Keep in touch with us as to what is going on. Link to Post - Back to Top   Logged Jesus is my best, best friend cayer203 Junior Blessing member is offline Joined: Jul 2005 Gender: Female Posts: 8 Location: Florida Re: "My Story" « Reply #6 on Oct 25, 2005, 2:33pm » Hello Kristi, I'm sorry that your car was stolen. I hope you get it back soon. Do you have a pharmacy that can deliver your drugs to you? I am praying for you. Cheryl Link to Post - Back to Top   Logged robin Junior Blessing member is offline hey hey :) Joined: Sept 2005 Gender: Female Posts: 16 Re: "My Story" « Reply #7 on Oct 25, 2005, 3:05pm » {{{{{KristiAnn}}}}}} sending you bunches of soft hugs! Im keeping you close in my prayers . That they get your jeep back soon and there was NO damage. So sorry you are alone and can't get where you need to go. People can be so cruel sometimes. Please let us know your okay! I battle disabilities also and know the pain and loniness you suffer. Robin Link to Post - Back to Top   Logged MsGuidedAngel Administrator owner/admin member is offline [Mo0:13] Joined: Apr 2004 Gender: Female Posts: 10,520 Location: Columbia River Gorge, Oregon "My Story" « Reply #8 on Oct 25, 2005, 7:09pm » Quote: I hope that you get your car back soon Kristi. How are you coming on getting the house? Is there someone from your church who could help you get your meds? I will certainly keep you in my prayers over the next few days. Keep in touch with us as to what is going on. I will try Susan, thanks.. I cannot promise anything though... My Jeep is Only Owed by me, I have the Ownership Title, my Jeep Grand Cherokee is a 4x4, its not a car, but, an SUV. Its gone someone stole it with No Compassion for the Severely Disabled. I think three men and one teenager (Skinheads) here are responsible for my Jeep being Stolen. I HAVE NO Money and NO Word on my Social Security Money as of yet, even the back pay being owed to me there is no Word as of yet. So, the house of my dreams is gone, and MY DREAMS have went out the Window!! Quote: Hello Kristi, I'm sorry that your car was stolen. I hope you get it back soon. Do you have a pharmacy that can deliver your drugs to you? I am praying for you. Cheryl Thanks Cheryl.... Quote: {{{{{KristiAnn}}}}}} sending you bunches of soft hugs! I'm keeping you close in my prayers . That they get your jeep back soon and there was NO damage. So sorry you are alone and can't get where you need to go. People can be so cruel sometimes. Please let us know your okay! I battle disabilities also and know the pain and loniness you suffer. Robin Thanks Robin, Cheryl and Susan for Caring and Replying!! I called the Pharmacy and a nice women who works there brought me my medications for this month, thanks so much to Safeway Stores, I have my Zoloft again, and my Prescription Sleeping Pills.. I AM NOT HAPPY AT ALL, I CANNOT BELIEVE SOMEONE WOULD STEAL MY JEEP GRAND CHEROKEE 4X4 WITH MY DISABLED PLACARD INSIDE FROM A DISABLED PARKING SPACE!! Link to Post - Back to Top   Logged djsasygirl Junior Blessing member is offline [Mo0:0] Joined: Aug 2005 Gender: Female Posts: 6 Location: usa "My Story" « Reply #9 on Oct 26, 2005, 7:53pm » My prayers are with you! I will send this prayer request to my prayer partners all over the world and also will add to my church's prayer book. I am also severely disabled at age 50. 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